Don’t you love it when you stand up, and you can still see
clearly. And you go to bed, and you fall asleep. And you have a virus, and two
weeks later it’s gone. And you eat a meal, and your body digests it.
And don’t you hate it when it doesn’t work, and it doesn’t
work, and it doesn’t work.
So much is controllable, but the very most essential things
don’t seem to be.
This evening, my world began to spin. I am so long past
enjoying merry-go-rounds. I will never ride a roller coaster again, except for
these times where I am utterly sleep deprived. After weeks of scraping for some
dregs of sleep, the wheels are falling off. I stare at walls and leave my eyes
unfocussed because it’s easier. I hope that God will help me walk to the
kitchen to get my lunch. I left the gym after ten minutes, because the benefits
of not fainting tomorrow didn’t seem to outweigh the detriment to my glandular
pain today. Even when I close my eyes, my brain spins around and around. I dare
not change position in bed, but I am lured by the idea that each new position
offers a comfy door way to sleep. It’s a lie, because no position works, and
with each change my brains acrobatics increase.
Vertigo, my body’s cry for mercy.
During the day I am like a diseased robot. She walks, she
talks {incoherently}, and even does, but she is laboured, and she is slurred,
weighty, and unwell. She is programmed for sitting and staring, and she
verbally coaxes herself to perform tasks.
Now I’m scared when evening arrives. As Ben twitches to
sleep, I lie there, awake. The most alert I have been in my heavy day. I am a
thought police woman, arresting every stimulating thought. It’s such a
relentless job that it completely defeats the purpose. The most common offender
is this,
“Tomorrow is going to be ghastly.”
And it’s true, so I only arrest it half heartedly.
I pop to the toilet one more time. Of course it’s the
bladder.
I have one more bowl of cereal, because I need the energy.
Then I double the sleep potion so highly recommended to me. It
contains hops, and valerian. They sound effective, but they don’t know how to
find sleep either.
I write because I’m tired of thought-policing and because
one day I will read this post and remember that dark patch of no sleep. It will
be a memory, like the many other posts I have written. It will not be current.
It will end.
It is no crime to merely exist; to just breathe is sufficient.
Dear Danielle
ReplyDeleteI read your post from January just today and want to encourage you because I know this sleep struggle that goes with cfs. I know the 'thought- policing' too. It's exhausting. I truly hope that since January you've found relief and also strength for each day. Thank you for your courage and honesty in writing this. Xx